Friedreich Ataxia Research Association (Australasia) (FARA(A)) is a not-for-profit organisation whose sole purpose is to fund research to find a cure for Friedreich Ataxia (FA), a condition for which, currently, there’s no treatment and no cure.
Please click on the yellow “Donate” button just over there on the right, to help our work continue. Click here to see some fundraising events supporters have put on recently and others that are coming up in the near future.
Here are just some of the newsworthy things we’re currently excited about and grateful for:
1. Go The Tan 2012 – Go The Tan is Melbourne’s official Tan time trial which took place this year on Friday/Saturday Feb 10/11. An amazing effort this year raised funds and, equally importantly, raised awareness of FA. A million thanks to all who participated. Check out some photos on our Facebook page.
2. FARA Scientific Symposium 2011 – On Monday November 28th, scientists and researchers gathered in Melbourne to share and present a range of projects aimed at developing treatments and eventually a cure for FA from across a multitude of disciplines. This is where funds raised by FARA go. Presentations were made of work that ranged from the very small – iPS cells – to an update on the clinical trial of Resveratrol in which the dose being tested is equivalent to what someone would get if they consumed 100 bottled of wine each day!
3. WA family portrait fundraiser – Ngarie Humphrey, a talented and extremely caring professional photographer in WA took a series of family portrait shots of Jake, Jules, Brad & Di and has posted them on her blog along with an call for donations which will run for six months – anyone who donates will be entered in a draw to win a photography session for themselves. See the full collection of photos here.
Brad, Jake, Di and Jules
Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and will be achieved, it’s only a question of time. Progress is made every single day and researchers’ continued commitment is explained by the sentiment expressed recently that “We think we can get this one”. And the work they do has immense importance since not only will it lead to treatment and ultimately a cure for FA, but the work they do on FA is likely to have a domino effect – provide key insights into many other disorders.
We invite you to explore this site to learn more about FA and the work of FARA(A). Feedback please to: terry@fara.org.au