Friedreich Ataxia Research Association (Australasia) (FARA(A)) is a not-for-profit organisation whose sole purpose is to fund research on Friedreich Ataxia (FA), a condition for which, currently, there’s neither treatment nor cure.
Please click on the yellow “Donate” button just over there on the right, to help our work continue. Click here for links some fundraising events supporters have put on recently.
For a full update of FARA(A), what we’ve been up to, the latest of our fundraising events, the state of global FA research and more, click here to download our latest newsletter.
Or you could support FARA by supporting an upcoming event:
If you’ll be at the South Curl Curl SLSC in NSW on November 17th between 11am and 4pm there’ll be a terrific Summer Sessions Shopping Party.
We’ll put news of more upcoming events here as soon as they’re available.
On Sunday 3rd November, at Guardian Angels Primary School on the Gold Coast, we had the inaugural FARA Swimathon. The event was a huge success! Counting matching funds, the event looks to have raised in excess of $60,000 at last count, but it’s not too late to contribute. Our EveryDayHero page will be live for some weeks still. Come make a sponsorship donation! More here.
Click to see all the fun of the whole day condensed into just five minutes!: YouTube
Huge congratulations to Jake Lampert who completed the Perth City to Surf recently:
And he was written up in the local paper for the inspirational effort he put in (click here and then click on “September”). Jake and his mum Jules capitalised on their efforts to secure an interview on “Friday Morning Wake Up” on RadioWest to talk about that, about FA and about their next fundraiser – comedy night with Louise Egan at York’s Castle Hotel. Click here to hear the interview.
On Feb 15th and 16th 2013 there was the annual Go The Tan event in Melbourne. Click for just a brief snippet from the launch and celebrity race from Friday 15th: GoTheTan2013
Click here for a link to our latest newsletter and who to contact to make sure we have up-to-date contact details for you. Click here for more details of research projects we’re currently funding or click here to read about the recent scientific symposium from FARA in North America at which a new drug trial was detailed.
Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and will be achieved, it’s only a question of time. Progress is made every single day and researchers’ continued commitment is explained by the sentiment expressed recently that “We think we can get this one”. And the work they do has immense importance since not only will it lead to treatment and ultimately a cure for FA, but the work they do on FA is likely to have a domino effect – provide key insights into many other disorders.
We invite you to explore this site to learn more about FA and the work of FARA(A). Feedback please to: email@example.com