FARA (Australasia)

Friedreich Ataxia Research Association (Australasia) (FARA(A)) is a not-for-profit organisation whose sole purpose is to fund research on Friedreich Ataxia (FA), a condition for which, currently, there’s neither treatment nor cure.

Please click on the yellow “Donate” button just over there on the right, to help our work continue.  Click here for links some fundraising events supporters have put on recently.

For a full update of FARA(A), what we’ve been up to, the latest of our fundraising events, the state of global FA research and more, click here to download our latest newsletter. Here are just some of the things our FA families and friends have been up to recently to raise funds for FARA:

Over the weekend of 18th October, Peter Evans led his committed team on their 4th “Paddle for Friedreich Ataxia” and they’ve raised more than $37,000 so far. This kind of ongoing commitment is what keeps FARA going. Their donation page is still live – click here to make their fundraising effort even more amazing!

Peter Evans (organiser), Mark Winnell, Gary Suckling, Lachlan Suckling, Pete Brearley & Ian Carter

Peter Evans (organiser), Mark Winnell, Gary Suckling, Lachlan Suckling, Pete Brearley & Ian Carter

Everyone with an FA connection needs to keep up the fundraising efforts for FARA. Over in WA, Jake’s and Luke’s parents joined the aptly named HBF “Run for a Reason” in May.

Brad & Jules (parents of Jake) and Sheila & Andrew (parents of Luke)

Brad & Jules (parents of Jake) and Sheila & Andrew (parents of Luke)

 

Speaking of running, on 2nd November, Emma Hampton completed the New York Marathon with her friends Celise and Colette as a FARA fundraiser specifically for her brother Nick Rousch.

 

Emma Celise and Colette completed NYC Marathon 2014

Emma Celise and Colette completed NYC Marathon 2014

 

On October 11th, Malcolm Skelton completed a 70KM open water kayak trip from Half Moon Bay to Fitzroy Island and back in FNQ. And that was just a taster – planning has already started for a kayak trip from Townsville to Cairns on Labour Day long weekend at the beginning of October 2015. Follow preparations on his Facebook page here.

Sunrise greets Malcolm Skelton in his kayak

Sunrise greets Malcolm Skelton in his kayak

Click here for a link to our latest newsletter and who to contact to make sure we have up-to-date contact details for you. Click here for more details of research projects we’re currently funding or click here to read about the recent scientific symposium from FARA in North America at which a new drug trial was detailed.

Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and will be achieved, it’s only a question of time. Progress is made every single day and researchers’ continued commitment is explained by the sentiment expressed recently that “We think we can get this one”. And the work they do has immense importance since not only will it lead to treatment and ultimately a cure for FA, but the work they do on FA is likely to have a domino effect – provide key insights into many other disorders.

We invite you to explore this site to learn more about FA and the work of FARA(A). Feedback please to: terry@fara.org.au