Thankyou to everyone who supported GO THE TAN on Rare Disease Day – February 28, 2015. We raised just over $12,000 from the three hour event and are thrilled with the support we received from the Friedreich Ataxia community. Should you still wish to make a donation, you can visit our Everyday Hero page https://gothetan2015.everydayhero.com/au/go-the-tan-2015 which will remain open for the next few weeks. Thank you!
The Friedreich Ataxia Research Association (FARA Australasia) is a not-for-profit organisation. Our sole purpose is to support research which will treat and cure Friedreich Ataxia (FA).
Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and achievable, it’s only a question of time. Progress is made every single day and the work researchers do now will lead to a treatment and ultimately a cure for FA.
FARA is a not for profit organisation dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich Ataxia.
FARA’s mission is to:
Slow, stop, and reverse the damage caused by Friedreich Ataxia.
FA is a fatal, genetic, neurological disease affecting 1 in 30,000 people. FA initially causes incoordination, slurred speech and difficulty walking, usually striking during childhood. As is progresses, FA causes complete incapacitation, vision, hearing and speech failure, combined with sever heart disease, soliosis and diabetes. In later stages, patients usually suffer form cardiac failure 15 – 20 years after diagnosis. Intellect remains unimpaired. As FA causes a greatly reduced life expectancy, it is a race against time for all FA sufferers and their families.
There is no cure.
We invite you to explore this site to learn more about FA and the work of FARA(A). Feedback please to: firstname.lastname@example.org.