FARA (Australasia)

Friedreich Ataxia Research Association (Australasia) (FARA(A)) is a not-for-profit organisation whose sole purpose is to fund research on Friedreich Ataxia (FA), a condition for which, currently, there’s neither treatment nor cure.

Please click on the yellow “Donate” button just over there on the right, to help our work continue.  Click here for links some fundraising events supporters have put on recently.

For a full update of FARA(A), what we’ve been up to, the latest of our fundraising events, the state of global FA research and more, click here to download our latest newsletter.

On June 9th, the 4th Annual FA Awareness Golf Day was held at Yellourn Golf Club in Victoria, led by Di Skipovich. As usual, a terrific time was had by all and more than $6,500 was raised. More pictures here.


On June 28th Sarah Skelton and Terry O’Hanlon led the inaugural Ride for FARA event on the Cairns Esplanade in QLD. Combining sponsorship with funds raised on the day (many thanks to Malcolm Skelton who looked after the sausage sizzle!), more than $2,000 was raised for FARA. More pictures here.

Terry, Sarah & Malcolm, Steven & Mel

Terry, Sarah & Malcolm, Steven & Mel

Go The Tan celebrated its 10th anniversary on February 7th and 8th this year and was a great success as always. Many thanks are due to Dave Hughes and others who’ve done so much to help publicise this event for us over the years, but this year we also give particular thanks to our Celebrity Ambassadors:

Go The Tan ambassadors: Craig Mottram, Michael Klim, Rob Mills, Sharelle McMahon with, Carrie Beetham & carer

And on February 21st and 22nd this year GTT moved also to Adelaide, this time meaning Go The Torrens! We were blessed with fine weather and a fun time was had by all. The event might be over for this year, but your chance to support the hardy souls who walked, jogged and ran in Adelaide’s official time trial isn’t. Just click here.

Angus Monfries (Port Adelaide) and Richard Douglas (Adelaide Crows) join forces to support young stars in the inaugural Go The Torrens.

On Sunday 3rd November 2013, at Guardian Angels Primary School on the Gold Coast, we had the inaugural FARA Swimathon. The event was a huge success!  Counting matching funds, the event looks to have raised in excess of $60,000 at last count. More here.

Jamie-Lee Dwyer is celebrated as she completes her lap.

Click to see all the fun of the whole day condensed into just five minutes!: YouTube

Click here for a link to our latest newsletter and who to contact to make sure we have up-to-date contact details for you. Click here for more details of research projects we’re currently funding or click here to read about the recent scientific symposium from FARA in North America at which a new drug trial was detailed.

Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and will be achieved, it’s only a question of time. Progress is made every single day and researchers’ continued commitment is explained by the sentiment expressed recently that “We think we can get this one”. And the work they do has immense importance since not only will it lead to treatment and ultimately a cure for FA, but the work they do on FA is likely to have a domino effect – provide key insights into many other disorders.

We invite you to explore this site to learn more about FA and the work of FARA(A). Feedback please to: terry@fara.org.au