Newsletter 2015

We are thrilled to bring you our latest newsletter for 2015. Please click on the link above to hear all the latest news from FARA Australasia on research and fundraising.

International Ataxia Research Conference 2015


The International Ataxia Research Conference was recently held in Windsor, London, United Kingdom. It was the biggest international ataxia conference ever held, with over 300 delegates attending from around the world. Researchers, patient advocacy groups, clinicians and pharmaceutical companies all joined together to discuss the latest research and how we can together make the critical advancements we need to move us towards treatments and a cure.

The 4 day conference program was packed with the latest breakthrough and often as yet unpublished research findings. You can see the research program here

Australian researchers and clinicians in attendance included Professor Martin Delatycki, Dr Louise Corben, Duncan Crombie, Matt Bird, Marguerite Evans Galea, Adam Vogel and Anna Nolan.

A summary of the research presented can be found under our Research section.



The Friedreich Ataxia Research Association (FARA Australasia)  is a not-for-profit organisation. Our sole purpose is to support research which will treat and cure Friedreich Ataxia (FA). 

Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and achievable,  it’s only a question of time. Progress is made every single day and the work researchers do now will lead to a treatment and ultimately a cure for FA.

FARA is a not for profit organisation dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich Ataxia.

FARA’s mission is to:

  • Slow, stop, and reverse the damage caused by Friedreich Ataxia.

FA is a fatal, genetic, neurological disease affecting 1 in 30,000 people. FA initially causes incoordination, slurred speech and difficulty walking, usually striking during childhood. As it progresses, FA causes complete incapacitation, vision, hearing and speech failure, combined with severe heart disease, scoliosis and diabetes. In later stages, patients usually suffer from cardiac failure 15 – 20 years after diagnosis. Intellect remains unimpaired. As FA causes a greatly reduced life expectancy, it is a race against time for all FA sufferers and their families.

We invite you to explore this site to learn more about FA and the work of FARA(A). Should you wish to contact FARA you can email Varlli Beetham at: or contact 03 9818 6551.