Friedreich Ataxia Research Association (Australasia) (FARA(A)) is a not-for-profit organisation whose sole purpose is to fund research on Friedreich Ataxia (FA), a condition for which, currently, there’s neither treatment nor cure.
Please click on the yellow “Donate” button just over there on the right, to help our work continue. Click here for links some fundraising events supporters have put on recently.
“And now”, as they say, “for something completely different”, how about a song for FARA! On Friday 1st March a cover of the Rolling Stones classic ‘Beast of Burden’ will be released worldwide by MGM, with all sales going to FARA. The band – Da’ Boy & Da’ Goose – have recorded the single in support of their friend Dannielle Masters who has FA. Click this link to go to iTunes to buy your copy! To give you a feel, here’s the video:
On Feb 15th and 16th there was the annual Go The Tan event in Melbourne. Here’s just a brief snippet from the launch and celebrity race from Friday 15th:
Click here for a link to our latest newsletter and who to contact to make sure we have up-to-date contact details for you. Click here for more details of research projects we’re currently funding or click here to read about the recent scientific symposium from FARA in North America at which a new drug trial was detailed.
Every dollar we raise is put to work; every research project we fund, every trial we sponsor represents progress. We’re on a mission with an objective that’s realistic and will be achieved, it’s only a question of time. Progress is made every single day and researchers’ continued commitment is explained by the sentiment expressed recently that “We think we can get this one”. And the work they do has immense importance since not only will it lead to treatment and ultimately a cure for FA, but the work they do on FA is likely to have a domino effect – provide key insights into many other disorders.
We invite you to explore this site to learn more about FA and the work of FARA(A). Feedback please to: terry@fara.org.au