Do you want to help fundraise for Friedreich Ataxia research?


FARA relies greatly on the support of the Friedreich Ataxia community to help fund our Friedreich Ataxia research programs. We are very grateful to those people who undertake fundraising activities, both big and small. We have put together a Fundraising and Events policy to help you get a better understanding of what is involved and how we can support each other. We would be very happy to talk to you some more about this should you be interested, so please contact us about it.


FARA fundraising and events policy 


Gone FA!

FA to Go – 5 days to go!


This Saturday 7th May, Fiona Dowdell will arrive into Fed Square to complete her walk from the Sydney Opera House.

Please join us to cheer Fiona on and welcome her and her support crew home.

You can either walk with Fiona from Malvern East Station (leaving 9am), or join us at Fed Square at 1pm for the Gone FA post walk event.

It should be a fabulous moment and we want to show our appreciation for a monster effort so please get behind it if you can.



All details are in the event page link.

See you soon Fiona!

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FARA Australasia news

FARA Australasia is very pleased to announce some recent changes that are taking place at board and executive level.


Varlli Scott has been elected FARA’s new President and Peter Evans has been elected to the new role of Chairman of the Board. Both roles (and all board roles) continue to be conducted in a voluntary capacity. Richard Steer and Jason Coffey remain as Treasurer and Secretary respectively, as does Bronya Keats in her role as Chief Research Officer. We sincerely thank Varlli for her twelve years in the Executive Director role. During this time, through her own direct efforts and in collaboration with stakeholders, she has helped guide FARA Australia to its prominent status with both the local and international Friedreich Ataxia research and patient communities. As President, her retained experience will be invaluable as we move in to the next phase of our development.


FARA will soon be advertising for a new Executive Director to lead us. Please feel free to contact us should you or someone you know be interested in talking to us about this very important role. We look forward to introducing you to the successful candidate in the near future.


With kind regards,

Steve Beetham
Immediate Past President

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Day 12 Good Friday!

Day 12. Friday 25th March. Good Friday. Today I walked about 22 Kms from the coffee shop in Milton to the intersection at Lemon Tree Creek Road. Half of the walk was in a built up area so I was able to walk on a pavement and the rest was on the highway. Great sunrise this morning but wet pretty much all the way. We are going well and could be a day ahead by Sunday:)).

Fiona sunrise

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Still walking!

Day 7. Kiama to intersection of Gerroa and Bolong Roads.
We started today with an amazing 6kms along the coastal walk and then another 21.5 kms along local roads. Gerroa road was quite difficult with a lot of traffic and a narrow walking strip.

Day7.4 Day7.5 Day7.6 Day7.7 Day7.8

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